General Discussions

New Features (2)

We have presence feature in chat! Just click the chat Button above Of course its a whole new chat along with a whole bunch of new things notice the new tabs above. Mod Support has been Hard at work especially Seenie who …

About the General Discussions category (1)
Introducing our Newest Community (1)
New treatment coming NEOD001 (3)
New Apps (1)
What happened? (4)
My husband (56) just had amyloidosis diagnosis (8)
North Carolina Support Group meeting (1)
Atlanta Support Group Meeting 1-23-16 (1)
Isis Pharmaceuticals changes name to Ionis Pharmaceuticals (3)
Updating and expanding community platform to support connection among people with rare illnesses (2)
You can give input to the FDA! (1)
Diflunisal in Canada (1)
Prothena Expanding NEOD001 Trial to include those with PREVIOUSLY TREATED AL CARDIAC Amyloid (1)
Please beware (1)
Do You Feel Like Your Physician Has Educated You Enough? (2)
Welcome Back! (13)
Need to hear some other's experiences (12)
Add informations about my condition Amyloidosis (AL) with only one organ affected, the liver (11)
Confused by results (4)
An update from captraerae (9)
Encouraging Update on ISIS-TTRRx in Transthyretin Amyloid-Related Cardiomyopathy (1)
How is everyone? ( 2 ) (24)
Cleveland Ohio Support Group Meeting (1)
Jacksonville FL Support Group Meeting (5)
AL Lungs (3)
Facebook pages (3)
Caregivers (9)
Amyloidosis support groups meeting (1)
Amyloidosis Awareness Booklet (2)
  • Message