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Amyloidosis Support Network

General Discussions


Topic Replies Activity
About the General Discussions category 1 April 19, 2016
Foot and Float 2019 Report 1 August 12, 2019
Interesting Facts About The Glacier Park Hiking/Fund Raiser Team 1 June 10, 2019
Community Help With Summer Fund Raiser For New Communities 2 May 31, 2019
Need Ideas! 1 May 14, 2019
New Features 2 July 19, 2018
Introducing our Newest Community 1 February 5, 2018
New treatment coming NEOD001 3 January 19, 2017
New Apps 1 January 18, 2017
What happened? 4 July 21, 2016
My husband (56) just had amyloidosis diagnosis 8 July 20, 2016
North Carolina Support Group meeting 1 January 26, 2016
Atlanta Support Group Meeting 1-23-16 1 December 27, 2015
Isis Pharmaceuticals changes name to Ionis Pharmaceuticals 3 December 19, 2015
Updating and expanding community platform to support connection among people with rare illnesses 2 December 7, 2015
You can give input to the FDA! 1 November 13, 2015
Diflunisal in Canada 1 November 10, 2015
Prothena Expanding NEOD001 Trial to include those with PREVIOUSLY TREATED AL CARDIAC Amyloid 1 November 10, 2015
Please beware 1 October 22, 2015
Do You Feel Like Your Physician Has Educated You Enough? 2 October 21, 2015
Welcome Back! 13 October 7, 2015
Need to hear some other's experiences 12 October 6, 2015
Add informations about my condition Amyloidosis (AL) with only one organ affected, the liver 11 September 26, 2015
Confused by results 4 September 19, 2015
An update from captraerae 9 September 6, 2015
Encouraging Update on ISIS-TTRRx in Transthyretin Amyloid-Related Cardiomyopathy 1 July 28, 2015
How is everyone? 24 July 26, 2015
Cleveland Ohio Support Group Meeting 1 July 23, 2015
Jacksonville FL Support Group Meeting 5 July 8, 2015
AL Lungs 3 July 3, 2015