About the General Discussions category
***Holiday Greetings from All of us here at Ben’s Friends***
New treatment coming NEOD001
My husband (56) just had amyloidosis diagnosis
North Carolina Support Group meeting
Atlanta Support Group Meeting 1-23-16
Isis Pharmaceuticals changes name to Ionis Pharmaceuticals
Updating and expanding community platform to support connection among people with rare illnesses
You can give input to the FDA!
Diflunisal in Canada
Prothena Expanding NEOD001 Trial to include those with PREVIOUSLY TREATED AL CARDIAC Amyloid
Do You Feel Like Your Physician Has Educated You Enough?
Need to hear some other's experiences
Add informations about my condition Amyloidosis (AL) with only one organ affected, the liver
Confused by results
An update from captraerae
Encouraging Update on ISIS-TTRRx in Transthyretin Amyloid-Related Cardiomyopathy
How is everyone?
Cleveland Ohio Support Group Meeting
Jacksonville FL Support Group Meeting
Amyloidosis support groups meeting
Amyloidosis Awareness Booklet
Free mayo webinar-amyloidosis- all types
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