Amyloidosis Support Network
Amyloidosis is a disease that occurs when amyloid proteins build up in your organs. Amyloid is an abnormal protein usually produced by cells in your bone marrow that can be deposited in any tissue or organ. Amyloidosis is rare, and the exact cause is often unknown. Treatments are available to help you manage your amyloidosis symptoms.
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Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
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Bens Friends Communities
Newbies Guide to Amyloidosis
Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
Preparing For An Appointment With A New Doctor
4 Types of Amyloidosis
General discussion about a wide range of topics related to Amyloidosis
North Carolina Support Group meeting
Atlanta Support Group Meeting 1-23-16
Isis Pharmaceuticals changes name to Ionis Pharmaceuticals
New Member Introductions
New members, start your experience here. Introduce yourself and share your story. Let us welcome you
This is our new group messaging area. Just enter a reply. If you want to send private chat simply click on the mebers avatar and start messaging. You can invite others to join you. You can also message by clicking on your avatar and the envelope in the top line
Events of interest to AmylidosisPatients and our Communities. Just email to have the staff add your event.
Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment
Discussion about this site, its organization, how it works, and how we can improve it.
Prayer and Healing Energy Requests
A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.